PAN Conversations, Webinars & Tools

Check out upcoming webinars, access past recordings, and discover useful resources below.

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September Conversations

PAN Conversation – AI Scribe Project Presentation September 30, 2026

Guest Presenters: Chris Johnston, PAN Patient Partner & Debra Turnbull, PAN Patient Partner

AI-Scribe programs are being used in healthcare settings across Canada. Many patients may not know when their conversations are recorded or how the system works. The Patient Advisors Network (PAN) created a toolkit to help patients make informed decisions.

Join PAN patient partners Debra Turnbull and Chris Johnston for a discussion about PAN’s AI-Scribes Survey initiative, including an early look at what PAN members are telling us about how AI scribes are being used across Canada.

EXPLORE THE AI-SCRIBE TOOLKIT

Before the discussion, review the Guide and Checklist, then share your experience through the AI Scribes Survey.

Preliminary results are expected by the end of September. The AI-Scribe Survey will remain open until December 31, 2026.  The toolkit is currently available in English.  A French translation is in progress and we will share an update when it is available.

Webinar Details:

Date: September 30, 2026
Time: 5:00 to 6:30 pm Eastern Time
Location: Online via Zoom (Link to be provided upon registration)

Debra Turnbull, Patient Partner – Debra has a background in network administration and Digital Health. Since 2019, she has shared patient and caregiver perspectives, with a focus on digital health literacy, AI-Scribes, and patient rights.

Chris Johnston, Patient Partner – Chris brings lived experience of complex chronic health issues and has been involved in patient-partnered health research and healthcare initiatives since 2018. Chris focuses on technologies that can improve the quality and accessibility of health services, including AI-Scribes.

To reserve your spot, please register via Zoom.

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Past Webinars & Recordings

Missed a session? See below.

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Lewis Eisen, Author: Why are Your Rules Yelling At Me? September 16, 2026

Guest Speaker: Lewis Eisen, Author

Lewis Eisen trained as a linguist and graduated from the University of Toronto Law School. He spent seventeen years in the Government of Canada and now advocates for more courteous and respectful policies through his Perfect Policies™ methodology. He is based in Ottawa, Canada.

Together, we explored how organizational rules and policies can be communicated with greater courtesy and respect.

Website: https://lewiseisen.com

Webinar Recording: Coming Soon!

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Beyond Healthcare: Building Person-Centered Pathways in Chatham-Kent May 25, 2026

Guest Speakers:

  • Renee Geniole, Executive Director – R.O.C.K.
  • Tiina Kaldma, Manager, Mobile Integrated Health, Medavie EMS Chatham Kent
  • Laura MacDougald, Navigation and Community Innovation Lead, Chatham-Kent Ontario Health Team

This webinar covered the Chatham-Kent Prescribe to Thrive Program, focusing on:

  • Social Prescribing: Connecting individuals to non-medical community supports to enhance health and wellbeing.
  • Pathway2Care Initiative: Addressing the needs of those experiencing houselessness through a collaborative outreach team.

Website for More Information: https://www.ckoht.ca/pathway2care/

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Healthcare is Changing.  How Can PAN Change Too? April 27, 2026

Speakers: PAN Members Alies Maybee, (Chair), Robert Wells, and Sandra Holdsworth

In this conversation, we explored how PAN can evolve alongside the changing landscape of healthcare.

Resources: Recording & resources available soon!

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Primary Care Living Lab March 4, 2026

Guest speaker: Dr. Onil Bhattacharyya a family physician, researcher, and Director of the Institute for Health System Solutions and Virtual Care at Women’s College Hospital.

The Primary Care Living Lab at Women’s College Hospital is a hub for testing digital tools in primary care, connecting providers, patients, and researchers. It focuses on new digital workflows such as e-Referral and tools like AI scribes, as part of the Centre of Digital Health Evaluation’s efforts.

Resources: Living Lab Demo Download: https://www.patientadvisors.ca/wp-content/uploads/2026/03/Living-Lab-Demo-PPE-4MAR2026-.pdf

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PAN Lived Experience is not a Story – It’s Expertise February 17, 2026

Guest speakers: Sandra Holdsworth & Bubli Chakraborty

  • Crafting your message
  • Engaging your audience
  • Ethical sharing

Resources:

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PAN December 2025 Conversation & Social December 16, 2025

Guest speakers:  Sandra Holdsworth & Bubli Chakraborty

  • Celebrating major successes from 2025
  • Gathering innovative ideas for the 2026 webinar series

  • Enhancing member engagement & participation

Resources:  Coming soon!

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PAN & SCAN Health November 20, 2025

Guest speakers:  Dr. Anne Snowdon

  • What is Healthcare Supply Chain and what are the “supplies” that are a part of it?
  • Understanding the Impact of Supply Chain Disruptions on People’s Health
  • Learning about the Key Issues and What is Being Done to Handle Them

Resources: PAN Webinar – Scan Health – November 2025 Vimeo Recording: https://vimeo.com/1148433758, SCAN Health Website: https://www.scanhealth.ca/

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Crafting a Narrative CV October 28, 2025

Guest speakers:  Rae Martens

  • Personal Statement: Craft a narrative that reflects your identity and personal growth.
  • Important Contributions: Showcase projects that made a difference.
  • Mentoring & Support: Highlight your role in guiding and teaching others.

Resources: PAN Webinar – Narrative CV – October 2025 Vimeo Recording: https://vimeo.com/1144741535, Rae Martens PDF: Designing Your Narrative CV

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Navigating Social Media and Health Misinformation September 30, 2025

Guest speakers: Maxime Le

  • Misinformation and how to know it when you see it
  • Various social media platforms

Resources: PDF: Navigating Social Media and Health Misinformation – Presentation Slides 

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Engagement Co-Design with P/CPs April 16, 2025

Guest speakers: Dr. Kerry Kuluski, P/CPs Lotje Hives, Sandra Holdsworth, Irene Wright

  • Gain first-hand perspectives on the co-design experience from P/CPs
  • Identify conditions that support meaningful collaboration
  • Discuss barriers, challenges, and strategies for effective co-design

Resources: website: Patient, Caregiver and Community Engagement Learning Series, PDF: Learning Series project details

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AI in Healthcare March 5, 2025

Guest speakers: Sacha Davis, President, AIMSS & Ehsan Misaghi, Director of Programs & Initiatives, AIMSS

  • No AI expertise needed – Learn the basics and how you can get involved
  • AI made simple – Understand key terms and concepts for patient/caregiver partners
  • Real-world impact – See how the Artificial Intelligence in Medical Systems Society (AIMSS) projects are already improving patient care

Resource: website AIMSS

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Writing Lay Summaries February 3, 2025

Guest speakers: Tayaba Khan, P/CP & JoAnne Mosel, P/CP

  • The main differences between Cochrane plain language summaries and abstracts
  • How to write summaries that are clear, concise, and work for all kinds of readers
  • Why these summaries matter and how they help patients, caregivers, and others make better healthcare decisions

Resource: research paper “Recommended characteristics and processes for writing lay summaries of healthcare evidence: a co-created scoping review and consultation exercise“

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Navigating a Life-changing Diagnosis: 7 keys for more choice and control  November 21, 2024

Guest speaker: Dr. Sammy Winemaker

  • How to create a more positive experience from diagnosis onward
  • Practical tools for navigating the healthcare system with confidence
  • Ways to foster hope, reduce fear, and feel more like a person rather than a patient

Resources: podcast: The Waiting Room Revolution, book: Hope for the Best Plan for the Rest 

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EMPaCT, an approach to equity in engagement October 14, 2024

Guest speakers: Dr. Ambreen Sayani, MD, MS, PhD & Alies Maybee, PAN Co-Chair

This webinar on Equity Mobilizing Partnerships in Community (EMPaCT) was if:

  • You’ve been asked to expand representation
  • You’re looking for practical ways to build capacity for inclusive and impactful partnerships
  • You believe we need all patient partners at the table

Resources: website EMPaCT, worksheet “EMPaCT’s Five Steps to a Community-Engaged Health Equity Analysis“

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Future Direction for Patient Engagement in Research June 18, 2024

Guest speaker: Anna Chudyk, MSc, PhD, Researcher

Resource: research paper, “Future directions for patient engagement in research: a participatory workshop with Canadian patient partners and academic researchers”

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Pioneer Paths – Patients in Education May 21, 2024

Guest speakers: Carolyn Canfield, P/CP & Annette McKinnon, P/CP

A conversation with two Patient/Caregiver Partners who have broken ground in this area

Resources: UBC’s Patient and Community Partnership for Education (PCPE), BMJ article “Healthcare education needs radical reform to emphasize careful and kind care”

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Why do we often feel like outsiders April 30, 2024

Guest speakers: Alies Maybee, Donna Rubenstein & Diana Ermel

A conversation about the collective insights from patient/caregiver partners who participated in the report by PAN and the Canadian Institutes of Health Research (CIHR)

Resources: report, Reimagining the research landscape, presentation

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Interoperability Saves Lives March 13, 2024

Guest speakers: Ewan Affleck CM., BSc., MDCM., CCFP. & Teri Price, Executive Director of Greg’s Wings

Resources: report, “Interoperability Saves Lives”, website Greg’s Wings, a not-for-profit organization established in honour of Greg Price

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Advancing Supply Chains February 21, 2024

Guest speaker: Dr. Anne Snowdon

Introduced the non-profit Supply Chain Advancement Network in Health (SCANH) and the work that it is doing to

  • advance global capacity to adopt and scale best practices in the healthcare supply chain to strengthen supply chain resilience to support patient outcomes
  • develop a Community of Practice to mobilize expert knowledge and research evidence to work with health systems to accelerate, and health system supply chain resilience

Resources: website SCANH, presentation

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CIHR Applicant Profile January 17, 2024

Guest speakers: Andrea Chow, researcher & Maureen Smith, P/CP

The webinar from the Canadian Institutes of Health Research (CIHR) covered:

  • Guide patient/caregiver partners on how to build your CV and apply for research proposals
  • Researcher’s perspective
  • Patient/caregivers’ perspectives

Resources: website CIHR, presentation

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Suggest a Webinar Topic

We want to hear from you! If there’s a topic you’d like PAN to cover in a future webinar, this will help us in our future planning. Email your suggestions to hello@patientadvisors.ca 

PAN Tools for P/CPs

In the Forum, there are times where the discussions highlight a need for guidance or a tool. Some of the Community came together as a PAN working group based on that need and developed tools to share with our Community.

Questions for Digital Health Projects – created by PAN’s Digital Health Working Group

Patient Engagement, Ethics and Safety – created by PAN’s Safety & Ethics Working Group

PAN Speaks out

Presentations and podcasts showcasing PAN

PAN & Ontario SPOR Support Unit (OSSU) Webinar – A Conversation About Patient Partner Outsider Syndrome:
Uncovering Nuances from the PAN Reimagining the Research Landscape Report 
October 15, 2025

Guest speakers:  OSSU & PAN Community Members 

The webinar, A Conversation About Patient Partner Outsider Syndrome; held on October 15, 2025, addressed the evolving roles of patient and caregiver partners in health research. Central to the discussion was the Patient Advisors Network report, Reimagining the Research Landscape, which highlights the challenges and feelings of alienation experienced by patient partners due to cultural differences and power imbalances.

Resources:

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ByteMed podcast by the AI in Medical Systems Society (AIMSS) – Mar 4, 2025.

PAN members Alies Maybee and Chris Johnston discuss why researchers should engage p/cps from the beginning of a project.

🎧 Listen to the full episode here: Spotify and Youtube

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The Canadian Association of Psychosocial Oncology (CAPO) webinar series – Feb 11, 2025.

How can research culture adapt to more effectively engage patients and caregiver partners in the future?

Co presentation by Alies Maybee and Donna Rubenstein (PAN Co-Chairs) and Dr. Anna Anna Chudyk, Researcher and Assistant Professor, University of Manitoba

**This is a registration link for the webinar recording: As a PAN member there is no access/registration fee. First, provide an email address to register, then follow the instructions and they will send you a link to the recording.

PAN Members Community Guidelines


We want everyone to feel welcome on our PAN community site, so we’ve created these guidelines to foster the community we would like to see. By joining and participating in our Community, you agree that you have read and will follow these guidelines.

Within the PAN Community site and in our dealings with each other through other PAN initiatives:

  1. Be respectful. We all have a shared goal of making healthcare better for Canadians. The PAN Community may include people you work with or may meet in future. As members of PAN, we demonstrate respect in our communication, sharing and crediting of resources/knowledge and  in our interactions with each other and stakeholders from outside the PAN.

 

  1. Focus on a positive and collaborative approach.  Let’s work together to build strong relationships so we can achieve great things. Diversity of thought and sharing of perspectives is healthy – we won’t all agree on everything, but we want to keep an open mind to consider new ideas and change.

 

  1. Do not discriminate or engage in harmful activity. We value different ideas and opinions but there is no place for any activity that could hurt someone, whether it’s physical, emotional, mental or digital. Racism, hateful language, or discrimination of any kind is not acceptable. Don’t post anything you wouldn’t want everyone in the world to know about or that you wouldn’t want anyone to know that it came from you.

 

  1. Use your true identity. We made this community site private so that we can feel free to be ourselves. Each member is vetted by our team to ensure people are here for the right reasons. Communicating with each other is based on trust.

To ensure the PAN community remains a safe place for all members, we ask you that you contact hello@patientadvisors.ca if you encounter a situation where guidelines may have been breached. PAN reserves the right to suspend or terminate membership in the Community for anyone who violates these guidelines.

 

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Directives de la communauté des membres du PAN


Nous voulons que tout le monde se sente bienvenu sur notre site Web communautaire de PAN. Nous avons donc créé ces directives pour aider au développement de la communauté que nous aimerions voir. En rejoignant et en participant à notre communauté, vous acceptez de lire et de suivre ces directives.

Sur le site de Web de la communauté de PAN et dans nos relations mutuelles dans le cadre d'autres initiatives de PAN :

  1. Soyez respectueux. Nous partageons tous l'objectif d'améliorer les soins de santé pour les Canadiens. La communautéde PAN peut inclure des personnes avec lesquelles vous travaillez ou que vous pourriez rencontrer à l'avenir. En tant que membres de PAN, nous faisons preuve de respect dans notre communication, le partage et l'attribution de ressources/connaissances et dans nos interactions les uns avec les autres et avec les parties prenantes extérieures de
  2. Se concentrersur une approche positive et collaborative.  Travaillons ensemble pour construire des relations solides afin de réaliser de grandes choses. La diversité de pensée et le partage des perspectives sont sains - nous ne serons pas tous d'accord sur tout, mais nous voulons garder l'esprit ouvert pour envisager de nouvelles idées et des changements.
  3. Ne faites pas de discrimination et neparticipez pas à des activités nuisibles. Nous apprécions les idées et les opinions différentes, mais il n'y a pas de place pour les commentaires susceptibles de blesser quelqu'un, que ce soit physiquement, émotionnellement, mentalement ou numériquement. Le racisme, les propos haineux ou la discrimination sous quelque forme que ce soit ne sont pas acceptables. Ne publiez rien que vous ne voudriez pas que tout le monde sache ou dont vous ne voudriez pas que l'on sache qu'il vient de vous.
  4. Utilisez votre véritable identité. Nous avons rendu ce site Web communautaire privé afin que nous puissions nous sentir libres d'être nous-mêmes. Chaque membre est accepté manuellementpar notre équipe pour s'assurer qu'il est là pour les bonnes raisons. La communication entre nous est basée sur la confiance.

Pour s'assurer que la communauté de PAN reste un endroit sûr pour tous les membres, nous vous demandons de contacter hello@patientadvisors.ca  si vous rencontrez une situation où les directives ont été violées. PAN se réserve le droit de suspendre ou de résilier l'adhésion à la communauté de toute personne qui enfreint ces directives.

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Patient/Caregiver Partners (P/CPs) are people with lived/living experience of the health system as patients and/or caregivers committed to improving the health system. We use the term P/CP, however other groups use terms such as:
- patient advisor
- patient family advisor
- patient experience advisor
- patient partner
- patient public partner
- Person with lived/living experience (PWLLE or PWLE)

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