As a Community of involved patient and caregiver partners, we have learned a lot about our health systems and about our role in improving healthcare for Canadians. We would like to share our insights with you as we develop reports and tips.

Making conferences count

These tips come out of the 2018 Conference Evaluation surveys completed by PAN members and other patients, caregivers and members of the public.

4 Tips for welcoming patients to your conference – for conference organizers

4 Tips for making the most of your conference experience – for conference attendees

Click tips above to open pdfs. For the full report: PAN Conference Evaluation Report 2018.

Making stories matter starts with the request.

These tips come out of the discussions held by PAN members who are constantly asked to tell their stories.

5 Tips for requesting stories from patients and caregivers

5 Tips for responding to a request for your story

Click tips above to open pdfs.

Person Generated Health Data (PGHD) Principles – a PAN Report

PGHD Principles through the Patient and Caregiver Lens

PAN was commissioned to identify and describe principles for PGHD through the lens of patients and caregivers.  We hope these principles will serve to inform and guide any changes in policy, practice and PGHD tool design to protect against misuse and support beneficial use.    
Appendix A:
 First Environmental Scan on PGHD, Jul 30, 2019
Appendix B: Second Environmental Scan on PGHD, Sep 25, 2019

Top Ten Insights into Citizen Engagement:
A Canadian Perspective

Hear our PAN colleague, Carolyn Canfield, share her deep insights into citizen engagement in healthcare with François-Pierre Gauvin, Senior Scientific Lead, Citizen Engagement and Evidence Curation of the McMaster Health Forum, McMaster University.

Carolyn draws on her decade long involvement as a citizen patient and her work not only in Canada but also in other countries like the UK, Norway and Australia among others.  This is a not-to-be-missed opportunity to hear a thoughtful reflection on the work and impact of patient and family advisors.