PAN was commissioned to identify and describe principles for PGHD through the lens of patients and caregivers. We hope these principles will serve to inform and guide any changes in policy, practice and PGHD tool design to protect against misuse and support beneficial use.
Appendix A: First Environmental Scan on PGHD, Jul 30, 2019
Appendix B: Second Environmental Scan on PGHD, Sep 25, 2019