PAN was commissioned to identify and describe principles for PGHD through the lens of patients and caregivers.
Person Generated Health Data (PGHD) Principles – a PAN Report
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PAN was commissioned to identify and describe principles for PGHD through the lens of patients and caregivers.
We want everyone to feel welcome on our PAN community site, so we’ve created these guidelines to foster the community we would like to see. By joining and participating in our Community, you agree that you have read and will follow these guidelines.
Within the PAN Community site and in our dealings with each other through other PAN initiatives:
To ensure the PAN community remains a safe place for all members, we ask you that you contact hello@patientadvisors.ca if you encounter a situation where guidelines may have been breached. PAN reserves the right to suspend or terminate membership in the Community for anyone who violates these guidelines.
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Nous voulons que tout le monde se sente bienvenu sur notre site Web communautaire de PAN. Nous avons donc créé ces directives pour aider au développement de la communauté que nous aimerions voir. En rejoignant et en participant à notre communauté, vous acceptez de lire et de suivre ces directives.
Sur le site de Web de la communauté de PAN et dans nos relations mutuelles dans le cadre d'autres initiatives de PAN :
Pour s'assurer que la communauté de PAN reste un endroit sûr pour tous les membres, nous vous demandons de contacter hello@patientadvisors.ca  si vous rencontrez une situation où les directives ont été violées. PAN se réserve le droit de suspendre ou de résilier l'adhésion à la communauté de toute personne qui enfreint ces directives.
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Patient/Caregiver Partners (P/CPs) are people with lived/living experience of the health system as patients and/or caregivers committed to improving the health system. We use the term P/CP, however other groups use terms such as:
- patient advisor
- patient family advisor
- patient experience advisor
- patient partner
- patient public partner
- Person with lived/living experience (PWLLE or PWLE)
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